Background
Ted DeVita was the son of National Institutes of Health oncologist and researcher Vincent T. DeVita, Junior., Doctor of Medicine, who diagnosed his son"s illness in 1972.
Ted DeVita was the son of National Institutes of Health oncologist and researcher Vincent T. DeVita, Junior., Doctor of Medicine, who diagnosed his son"s illness in 1972.
His story, along with that of Texas patient David Vetter, was used to create the 1976 made-for-television movie The Boy in the Plastic Bubble. In the film, John Travolta played "Tod," a teenaged boy who lived in a sterile bubble due to illness. DeVita was 14 when the film, unauthorized by his family, was released.
Severe aplastic anemia is a rare disease in which the body is suddenly unable to produce new blood cells and platelets.
Its victims have no effective immune system and must be protected from infection. DeVita was admitted to the National Institute of Health Clinical Center.
While scientists and physicians tried all known treatments for his condition, DeVita was isolated in Building 10, in a "laminar airflow room." This specialized room on "13-East" had been created in 1969 to protect leukemia patients whose immune systems had been compromised by chemotherapy. Physicians hoped the sterile room and frequent blood transfusions would sustain him until he recovered spontaneously or an effective treatment was foundation
The "laminar airflow room" gave DeVita a living space the size of a normal bedroom.
He was able to walk around and participate in many normal activities, but could be touched only with gloved hands. He lived surrounded by plastic sheeting containing a door-sized space through which sterilized objects, including food, clothing, and books, and occasionally doctors and nurses, could pass in and out. He was surrounded by a "curtain" of air, a steady outflow of positive air pressure to expel potential pathogens.
His family recalls DeVita as a bright and curious boy who grew to be a strong-willed teenager.
DeVita"s emotional adjustment to the confinement and isolation was difficult. On the few occasions DeVita left his room, he was enclosed in a spacesuit and helmet, with an air pump that expelled pathogens.
The suit drew so much attention that he rarely chose to leave. Ted DeVita died in 1980.
His death was not primarily due to aplastic anemia, but was caused by iron overload from too many transfusions.
Treatment for DeVita"s disease is much more successful today, with a cure rate of up to 80 percent of aplastic anemia patients. Bone marrow transplants, transfusions, iron chelating regimens, and brief periods in positive airflow rooms are used in treating these patients.